Table 1 PIOs participating in the study
From: Patient and interest organizations’ views on personalized medicine: a qualitative study
PIO name | Membership | Country |
|---|---|---|
DEBRA Hrvatska (Dystrophic Epidermolysis Bullosa Research Association) | Approx. 50 families | Croatia |
Genetic Alliance UK | >100 organizational members | UK |
Genetic Alliance USA | >1,000 organizational members | USA |
LUPUS Europe | Approx. 22 country memberships | Denmark |
Sarcoma | Approx. 350 individual members | Norway |
The European AIDS Treatment Group | Approx. 110 individual members | Belgium |
The European Umbrella Organisation for Psoriasis Movements (EUROPSO) | Approx. 20 country memberships | Norway |
The International Patient Organisation for Primary Immunodeficiencies (IPOPI) | Approx. 55 country memberships | UK |
The Norwegian Breast Cancer Society | Approx. 14,500 individual members | Norway |
The Norwegian Cancer Society | Approx. 113,000 individual members | Norway |
The Norwegian Childhood Cancer Organization | >3,000 individual members | Norway |
The Norwegian Council for Mental Health | Approx. 29 organizational members | Norway |
The Norwegian Diabetes association | Approx. 40,000 individual members | Norway |