Table 2 Views of the study population on informing and informed consent
Would you like to be informed if your information would be used for research purposes? | Women % | Men % | <=30 % | 31-40 % | 41-50 % | 51-60 % | 61-70 % | >70 % | Total % |
I would like to be informed every time | 47.5 | 48.1 | 31.8 | 48.9 | 56.1 | 48.3 | 56.0 | 29.2 | 47.8 |
In some cases there is no need to inform | 35.3 | 30.0 | 36.4 | 36.2 | 24.6 | 36.8 | 28.0 | 43.8 | 33.1 |
No need to inform at all | 17.3 | 21.9 | 31.8 | 14.9 | 19.3 | 14.9 | 16.0 | 27.1 | 19.1 |
p = 0.028 | |||||||||
Should an informed consent be obtained from every study participant in a register-based study? | Women % | Men % | <=30 % | 31-40 % | 41-50 % | 51-60 % | 61-70 % | >70 % | Total % |
No need for obtaining informed consent | 26.5 | 37.1 | 29.5 | 23.4 | 33.3 | 23.9 | 35.2 | 33.3 | 30.3 |
In some cases informed consent should be obtained | 44.4 | 31.4 | 50.0 | 44.7 | 36.8 | 43.2 | 35.2 | 33.3 | 39.6 |
Informed consent should always be obtained | 29.2 | 31.4 | 20.5 | 31.9 | 29.8 | 33.0 | 29.6 | 33.3 | 30.1 |
p = 0.019 | |||||||||
What kind of practice would be best, if informed consent was required for register-based studies? | Women % | Men % | <=30 % | 31-40 % | 41-50 % | 51-60 % | 61-70 % | >70 % | Total % |
Informed consent should be obtained for every study | 12.9 | 13.5 | 9.1 | 13.3 | 14.3 | 8.1 | 17.2 | 15.9 | 13.4 |
One informed consent for one field of research (for example cancer research) | 43.3 | 47.1 | 50.0 | 44.4 | 41.4 | 46.5 | 45.9 | 36.4 | 44.6 |
One informed consent for research use of a certain register | 43.4 | 38.1 | 40.9 | 42.2 | 41.4 | 45.9 | 36.9 | 45.5 | 41.3 |
Other | 0.4 | 1.3 | 0.0 | 0.0 | 3.6 | 0.0 | 0.0 | 2.3 | 0.8 |