Table 1 Research participants and methods of data collection

Parents of cases

26 (male)

Interview

21 (female)

5 (male)

Focus group

Parents of controls

2 (male)

Interview

6 (female)

Senior research scientists

2 (male)

Interview

Research assistants

- Recruitment of cases and controls, seeking consent: 2 (male) and 2 (female);

Interview

- Processing samples and managing cases: 2 (female)

Ethics committee member

1 (male)

Interview