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Table 2 Acceptability of data management options for proposed studies that fall outside the scope of an original consent

From: IRB practices and policies regarding the secondary research use of biospecimens

  Prohibit n (%) Discourage n (%) Permit n (%) Encourage n (%) Require n (%)
Anonymize the data 16 (31) 7 (14) 12 (24) 9 (18) 7 (14)
Seek new consent from participants 0 (0) 0 (0) 21.6 (11) 23 (45) 17 (33)
Consider an application for waiver 5 (10) 14 (28) 20 (39) 8 (16) 4 (8)