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Table 2 Acceptability of data management options for proposed studies that fall outside the scope of an original consent

From: IRB practices and policies regarding the secondary research use of biospecimens

 

Prohibit n (%)

Discourage n (%)

Permit n (%)

Encourage n (%)

Require n (%)

Anonymize the data

16 (31)

7 (14)

12 (24)

9 (18)

7 (14)

Seek new consent from participants

0 (0)

0 (0)

21.6 (11)

23 (45)

17 (33)

Consider an application for waiver

5 (10)

14 (28)

20 (39)

8 (16)

4 (8)