Table 2 Primary studies specific to Community engagement in genetic and genomic research in Africa
From: Community engagement strategies for genomic studies in Africa: a review of the literature
1 | Marsh VM, Kamuya DM, Mlamba AM, Williams TN, Molyneux SS. Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya. BMC Med Ethics. 2010;11:13. (Kenya) [18] |
2 | Marsh VM, Kombe F., Fitzpatrick R, Williams TN, Parker M, Molyneux CS. Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya. BMC Medical Ethics 10/2013; 14(1):41. (Kenya) [19] |
3 | Rotimi, C., M. Leppert, et al. (2007). “Community engagement and informed consent in the International HapMap project.” Community genetics 10(3): 186-198. (International including Nigeria) [11] |
4 | Tindana, P., S. Bull, et al. (2012). “Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience.” BMC medical ethics 13(1): 15. (Ghana) [10] |