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Table 3 Testing post-pre dialogue change in consent choices across the five scenarios*

From: Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue

Scenario

 

Pre-Dialogue**

Post-Dialogue**

Difference

P-value for difference

(paired t-test), df = 78 ***

A) Prescribing information for improving care

Mean (SD)

3.49 (1.08)

3.29 (1.25)

-0.21 (1.07)

0.096

B) Prescribing information for marketing research

Mean (SD)

1.99 (1.20)

1.94 (1.29)

-0.03 (0.88)

0.798

C) Linking work, education or income to individual's health record

Mean (SD)

2.79 (1.36)

3.03 (1.24)

0.19 (1.03)

0.104

D1) Linking individual's information with leftover tissue with no commercial use

Mean (SD)

3.18 (1.23)

3.06 (1.25)

-0.17 (1.27)

0.251

D2) Linking individual's information with leftover tissue with possible commercial use

Mean (SD)

2.31 (1.10)

2.40 (1.05)

0.06 (1.06)

0.595

  1. * Due to an error in the Hamilton survey, the full consent scale was not offered. The option "Do not use" was not offered.
  2. ** Scores: 1 = do not use; 2 = consent for each use; 3 = broad authorization; 4 = notification with opt-out; 5 = use without notification;
  3. *** Bonferroni correction: Alpha = 0.01 (0.05/5)