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Table 3 Testing post-pre dialogue change in consent choices across the five scenarios*

From: Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue

Scenario   Pre-Dialogue** Post-Dialogue** Difference P-value for difference
(paired t-test), df = 78 ***
A) Prescribing information for improving care Mean (SD) 3.49 (1.08) 3.29 (1.25) -0.21 (1.07) 0.096
B) Prescribing information for marketing research Mean (SD) 1.99 (1.20) 1.94 (1.29) -0.03 (0.88) 0.798
C) Linking work, education or income to individual's health record Mean (SD) 2.79 (1.36) 3.03 (1.24) 0.19 (1.03) 0.104
D1) Linking individual's information with leftover tissue with no commercial use Mean (SD) 3.18 (1.23) 3.06 (1.25) -0.17 (1.27) 0.251
D2) Linking individual's information with leftover tissue with possible commercial use Mean (SD) 2.31 (1.10) 2.40 (1.05) 0.06 (1.06) 0.595
  1. * Due to an error in the Hamilton survey, the full consent scale was not offered. The option "Do not use" was not offered.
  2. ** Scores: 1 = do not use; 2 = consent for each use; 3 = broad authorization; 4 = notification with opt-out; 5 = use without notification;
  3. *** Bonferroni correction: Alpha = 0.01 (0.05/5)