Table 3 Recontacting participants

Recontact

No

1

5

8

14

Yes

0

1

22

23

Total

1

6

30

37

b: Reasons for recontacting

Frequency

Percent

Valid percent

Cumulative percent

Valid

Further health data

1

2.7

2.7

2.7

Future research

4

10.8

10.8

13.5

Future research related to present project

2

5.4

5.4

18.9

Future research, additional information

1

2.7

2.7

21.6

Future research, additional information, family members

1

2.7

2.7

24.3

Future research, family members

3

8.1

8.1

32.4

Future research, future use of biological material in genetic research

1

2.7

2.7

35.1

Future research/future information

1

2.7

2.7

37.8

Future use of samples

3

8.1

8.1

45.9

NA

14

37.8

37.8

83.8

Not specified

1

2.7

2.7

86.5

Other research projects

1

2.7

2.7

89.2

Results, recontact

3

8.1

8.1

97.3

Return results

1

2.7

2.7

100.0

Total

37

100.0

100.0

c: Recontacting_Headings

Frequency

Percent

Valid percent

Cumulative percent

Valid

Do I have any options

1

2.7

2.7

2.7

Does my child have any options

1

2.7

2.7

5.4

Open consent

1

2.7

2.7

8.1

Open consent and document to recontact

1

2.7

2.7

10.8

What about confidentiality

1

2.7

2.7

13.5

Who can participate in the study

1

2.7

2.7

16.2

Confidentiality

1

2.7

2.7

18.9

Consent

7

18.9

18.9

37.8

Consent, document to recontact

2

5.4

5.4

43.2

Future contact/future research/other use

1

2.7

2.7

45.9

NA

13

35.1

35.1

81.1

Other research

1

2.7

2.7

83.8

Possibility of recontacting

1

2.7

2.7

86.5

Recruitment for future projects

1

2.7

2.7

89.2

Requirement to researcher

1

2.7

2.7

91.9

Storage and safekeeping of DNA

1

2.7

2.7

94.6

Suggested as a box

1

2.7

2.7

97.3

What about confidentiality

1

2.7

2.7

100.0

Total

37

100.0

100.0