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Table 3 Recontacting participants

From: Consenting for current genetic research: is Canadian practice adequate?

a: Recontacting In relation of secondary use Total
NA No Yes
Recontact No 1 5 8 14
  Yes 0 1 22 23
Total 1 6 30 37
b: Reasons for recontacting Frequency Percent Valid percent Cumulative percent
Valid Further health data 1 2.7 2.7 2.7
  Future research 4 10.8 10.8 13.5
  Future research related to present project 2 5.4 5.4 18.9
  Future research, additional information 1 2.7 2.7 21.6
  Future research, additional information, family members 1 2.7 2.7 24.3
  Future research, family members 3 8.1 8.1 32.4
  Future research, future use of biological material in genetic research 1 2.7 2.7 35.1
  Future research/future information 1 2.7 2.7 37.8
  Future use of samples 3 8.1 8.1 45.9
  NA 14 37.8 37.8 83.8
  Not specified 1 2.7 2.7 86.5
  Other research projects 1 2.7 2.7 89.2
  Results, recontact 3 8.1 8.1 97.3
  Return results 1 2.7 2.7 100.0
  Total 37 100.0 100.0  
c: Recontacting_Headings Frequency Percent Valid percent Cumulative percent
Valid Do I have any options 1 2.7 2.7 2.7
  Does my child have any options 1 2.7 2.7 5.4
  Open consent 1 2.7 2.7 8.1
  Open consent and document to recontact 1 2.7 2.7 10.8
  What about confidentiality 1 2.7 2.7 13.5
  Who can participate in the study 1 2.7 2.7 16.2
  Confidentiality 1 2.7 2.7 18.9
  Consent 7 18.9 18.9 37.8
  Consent, document to recontact 2 5.4 5.4 43.2
  Future contact/future research/other use 1 2.7 2.7 45.9
  NA 13 35.1 35.1 81.1
  Other research 1 2.7 2.7 83.8
  Possibility of recontacting 1 2.7 2.7 86.5
  Recruitment for future projects 1 2.7 2.7 89.2
  Requirement to researcher 1 2.7 2.7 91.9
  Storage and safekeeping of DNA 1 2.7 2.7 94.6
  Suggested as a box 1 2.7 2.7 97.3
  What about confidentiality 1 2.7 2.7 100.0
  Total 37 100.0 100.0  
  1. NA: not applicable.