Areas of interest | Questions |
---|---|
Reason/motivation | 1. Was there a special reason why you made an advance directive? |
Prompts: | |
a. Can you tell me more about this reason? | |
b. Did you make your advance directive before you were given this diagnosis or after? | |
c. What do you hope for, now that you have an advance directive? | |
d. Can you tell me the most important things you want to say? | |
Support/advice received/information of others | 2. Did you seek assistance in making your advance directive? |
Prompts: | |
a. (if yes) Who helped you? | |
b. Why did you ask particularly this person? | |
c. (if no doctor was mentioned) Did you also seek assistance from a doctor? | |
3. Does your doctor know about your advance directive and its contents? | |
Applicability | 4. Did you consider at which point in time you want others to act according to your advance directive? |
Prompts: | |
a. (if yes) What do you have in mind? The very end of life, or situations where you are no longer able to express yourself or other? | |
b. Did you express certain preferences in the context of particular (probable future/already existing) diseases? | |
c. (if yes) Will these count throughout the course of the disease or just in certain phases? | |
5. Do you want the contents of your advance directive to be applicable for emergencies or serious accidents? | |
Values | 6. Are there values which have been of particular importance in your life? |
7. Are there values which you disapprove of? | |
8. Did these values which are important for you have an influence on your advance directive? | |
9. Do these values also determine your end-of-life preferences? | |
Treatment preferences/situative context/decision-making | 10. What is of particular importance for you when it comes to the end of your life? |
11. Is there something that you would not wish to happen under any circumstances and that those who are acting on your advance directive should respect? | |
12. Is there something that you would categorically wish to happen and that those acting on your advance directive should respect? | |
13. Is this true for all situations you can think of? | |
14. Are there situations or scenarios in which you would prefer that decisions are made by others rather than you? | |
Effect of having completed an AD | 15. Does having an advance directive make you feel secure? |
16. Have you since been thinking more often about death and dying? | |
Amendments/Changes | 17. Have you resigned your advance directive since you first made it? |
18. Have you changed it since first making it? | |
Prompts: | |
a. (if no) Why didn’t you change anything? | |
b. (if yes) What did you change? | |
c. Why did you change this? | |
d. Did you seek assistance in making these changes? | |
e. (if yes) From whom and why? | |
Proxy/durable power of attorney | 19. Do you have a proxy? |
20. Why did/didn’t you appoint one? | |
21. What do you expect from this durable power of attorney? | |
22. Whom did you appoint as proxy? | |
23. Why this person? | |
Closure | 24. Thank you for your participation. How do you feel after this interview? Do you have any questions? |