Table 1 Useful online ELSI resources, especially relevant for performing research in African populations
From: Ethical and legal implications of whole genome and whole exome sequencing in African populations
| Resource | Link |
|---|---|
| H3Africa High-Level Principles on Ethics, Governance and Resource Sharing | http://h3africa.org/ethics_governance_resourcesharing.cfm |
| Informed Consent: Ethical Considerations for Investigators Proposing to Collect Samples for the H3Africa Program | http://h3africa.org/informedConsent.cfm |
| NIH National Human Genome Research Institute: Informed Consent for Genomics Research | http://www.genome.gov/27026588 |
| NIH Office of Extramural Research: Protecting Human Research Participants Course | http://phrp.nihtraining.com/users/login.php |
| About the 1000 Genomes Project (Informed Consent Template) | http://www.1000genomes.org/about |
| Training and Resources in Research Ethics Evaluation | http://elearning.trree.org |
| MalariaGEN: Ethics and Governance | http://www.malariagen.net/community/ethics-governance |
| Southern African Society for Human Genetics: Documents and Links | http://www.sashg.org/documents.htm |