Table 1 Questionnaire preferences regarding how to be given bad health news about your child

1

To be alone

11

To be informed before final diagnosis

2

To be with a relative

12

To be informed after final diagnosis

3

To be informed directly

13

To be informed in front of your child

4

To be informed gradually

14

To be informed in a sympathetic way

5

To be informed with good health news only

15

To be informed by a single doctor

6

To be informed with bad health news only

16

To be informed by your doctor

7

To be informed with good and bad health news

17

To be informed by a senior doctor not related to the child’s case

8

To be informed of a prognosis

18

Confidentiality of the diagnosis

9

To be informed of others with a similar condition

19

To be informed as soon as possible in the case of newborns

10

To be informed of an approach for the diagnosis

20

To be informed by a relative