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  1. Research article

    Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies

    The past 10 years have witnessed a significant growth in sharing of health data for secondary uses. Alongside this there has been growing interest in the public acceptability of data sharing and data linkage p...

    Mhairi Aitken, Jenna de St. Jorre, Claudia Pagliari, Ruth Jepson and Sarah Cunningham-Burley

    BMC Medical Ethics 2016 17:73

    Published on: 10 November 2016

  2. Research article

    Knowledge, attitude and practice of healthcare ethics among resident doctors and ward nurses from a resource poor setting, Nepal

    Healthcare ethics is neglected in clinical practice in LMICs (Low and Middle Income Countries) such as Nepal. The main objective of this study was to assess the current status of knowledge, attitude and practi...

    Samaj Adhikari, Kumar Paudel, Arja R. Aro, Tara Ballav Adhikari, Bipin Adhikari and Shiva Raj Mishra

    BMC Medical Ethics 2016 17:68

    Published on: 8 November 2016

  3. Research article

    Seeking consent for research with indigenous communities: a systematic review

    When conducting research with Indigenous populations consent should be sought from both individual participants and the local community. We aimed to search and summarise the literature about methods for seekin...

    Emily F. M. Fitzpatrick, Alexandra L. C. Martiniuk, Heather D’Antoine, June Oscar, Maureen Carter and Elizabeth J. Elliott

    BMC Medical Ethics 2016 17:65

    Published on: 22 October 2016

  4. Research article

    Communicating BRCA research results to patients enrolled in international clinical trials: lessons learnt from the AGO-OVAR 16 study

    The focus on translational research in clinical trials has the potential to generate clinically relevant genetic data that could have importance to patients. This raises challenging questions about communicati...

    David J. Pulford, Philipp Harter, Anne Floquet, Catherine Barrett, Dong Hoon Suh, Michael Friedlander, José Angel Arranz, Kosei Hasegawa, Hiroomi Tada, Peter Vuylsteke, Mansoor R. Mirza, Nicoletta Donadello, Giovanni Scambia, Toby Johnson, Charles Cox, John K. Chan…

    BMC Medical Ethics 2016 17:63

    Published on: 21 October 2016

  5. Research article

    Research in disaster settings: a systematic qualitative review of ethical guidelines

    Conducting research during or in the aftermath of disasters poses many specific practical and ethical challenges. This is particularly the case with research involving human subjects. The extraordinary circums...

    Signe Mezinska, Péter Kakuk, Goran Mijaljica, Marcin Waligóra and Dónal P. O’Mathúna

    BMC Medical Ethics 2016 17:62

    Published on: 21 October 2016

  6. Debate

    Personalized assent for pediatric biobanks

    Pediatric biobanking is considered important for generating biomedical knowledge and improving (pediatric) health care. However, the inclusion of children’s samples in biobanks involves specific ethical issues...

    Noor A. A. Giesbertz, Karen Melham, Jane Kaye, Johannes J. M. van Delden and Annelien L. Bredenoord

    BMC Medical Ethics 2016 17:59

    Published on: 12 October 2016

  7. Research article

    Disclosing neuroimaging incidental findings: a qualitative thematic analysis of health literacy challenges

    Returning neuroimaging incidental findings (IF) may create a challenge to research participants’ health literacy skills as they must interpret and make appropriate healthcare decisions based on complex radiolo...

    Caitlin E. Rancher, Jody M. Shoemaker, Linda E. Petree, Mark Holdsworth, John P. Phillips and Deborah L. Helitzer

    BMC Medical Ethics 2016 17:58

    Published on: 11 October 2016

  8. Research article

    An empirical study of the ‘underscreened’ in organised cervical screening: experts focus on increasing opportunity as a way of reducing differences in screening rates

    Cervical cancer disproportionately burdens disadvantaged women. Organised cervical screening aims to make cancer prevention available to all women in a population, yet screening uptake and cancer incidence and...

    Jane H. Williams and Stacy M. Carter

    BMC Medical Ethics 2016 17:56

    Published on: 6 October 2016

  9. Review

    If you build it, they will come: unintended future uses of organised health data collections

    Health research increasingly relies on organized collections of health data and biological samples. There are many types of sample and data collections that are used for health research, though these are colle...

    Kieran C. O’Doherty, Emily Christofides, Jeffery Yen, Heidi Beate Bentzen, Wylie Burke, Nina Hallowell, Barbara A. Koenig and Donald J. Willison

    BMC Medical Ethics 2016 17:54

    Published on: 6 September 2016

  10. Research article

    Young people’s views about the purpose and composition of research ethics committees: findings from the PEARL qualitative study

    Avon Longitudinal Study of Parents and Children (ALSPAC) is a birth cohort study within which the Project to Enhance ALSPAC through Record Linkage (PEARL) was established to enrich the ALSPAC resource through ...

    Suzanne Audrey, Lindsey Brown, Rona Campbell, Andy Boyd and John Macleod

    BMC Medical Ethics 2016 17:53

    Published on: 2 September 2016

  11. Research article

    Confidentiality breaches in clinical practice: what happens in hospitals?

    Respect for confidentiality is important to safeguard the well-being of patients and ensure the confidence of society in the doctor-patient relationship. The aim of our study is to examine real situations in w...

    Cristina M. Beltran-Aroca, Eloy Girela-Lopez, Eliseo Collazo-Chao, Manuel Montero-Pérez-Barquero and Maria C. Muñoz-Villanueva

    BMC Medical Ethics 2016 17:52

    Published on: 2 September 2016

  12. Research article

    Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan

    As in other countries, the traditional doctor-patient relationship in the Japanese healthcare system has often been characterised as being of a paternalistic nature. However, in recent years there has been a g...

    Victoria Coathup, Harriet J. A. Teare, Jusaku Minari, Go Yoshizawa, Jane Kaye, Masanori P. Takahashi and Kazuto Kato

    BMC Medical Ethics 2016 17:51

    Published on: 24 August 2016

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