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Table 2 Detailed information on ACP-conversations and participants

From: “I just think that we should be informed” a qualitative study of family involvement in advance care planning in nursing homes

Nursing home

Conversation term

Patient

Relatives present

Staff present

Place and length

Template for ACP questions?

A

Admission conversation

Woman, 91, stroke, aphasia, in wheelchair. Married.

Daughter

Physician, primary nurse, head nurse

Duty room 30 minutes

Yes

B

Admission conversation

Woman, 89, wheelchair, amputee leg, blind. Widow.

Daughter

Physician, nursing assistant, two nurses, head nurse

Duty room 30 minutes

Yes

C

Preparatory conversation Routinely held when patient was diagnosed as dying.

Woman, not present, 90, severe dementia, married.

Husband, son, daughter.

Physician, nurse

Meeting room, 45 minutes

Yes

D

Bi- annual conversation

Man, 80, stroke, wheelchair, married

Wife

Physician

Patient’s room 25-30 minutes

No

E

Admission conversation

Woman, 87, early dementia, seems healthy, single?

Niece

Physician, intern, primary nurse

Living room, 50 minutes

No

F

Bi-annual conversation

Woman, 88, stroke, aphasia, widow

Son

Physician, nurse, nurse student

Living room, 30 minutes

No

G

No observation

     

H

Admission conversation

Woman, 100, early dementia, severe hearing loss

Daughter, son in law

Physician, nurse, head nurse

Patient’s room, 70 minutes

Yes